NEWS
Highlights of the IOF World Congress on Osteoporosis
May 2002 -
The World Congress
on Osteoporosis (held May 10-15, Lisbon, Portugal) was organized by the
International Osteoporosis Foundation (IOF), an organization made up of
139 member societies representing 71 countries. This was the largest
meeting ever held in the field of osteoporosis, with over 5000 attendees
seeking a better understanding of the epidemiology, pathogenesis,
prevention, and treatment of osteoporosis.
Osteoporosis, or porous
bone, is a disease characterized by low bone mass and structural deterioration
of bone tissue, leading to bone fragility and an increased susceptibility to
fractures of the hip, spine, and wrist.
Osteoporosis is a major
public health threat for more than 28 million Americans, 80 percent of whom are
women. In the U.S. today, 10 million individuals already have the disease and 18
million more have low bone mass, placing them at increased risk for
osteoporosis.
Osteoporosis is often
called the "silent disease" because bone loss occurs without symptoms.
People may not know that they have osteoporosis until their bones become so weak
that a sudden strain, bump, or fall causes a fracture or a vertebra to collapse.
Collapsed vertebrae may initially be felt or seen in the form of severe back
pain, loss of height, or spinal deformities such as kyphosis or stooped posture.
While osteoporosis and
osteoarthritis are two very different medical conditions with little in common,
the similarity of their names causes great confusion. These conditions develop
differently, have different symptoms, are diagnosed differently, and are treated
differently.
For additional information
about the similarities and differences between Osteoporosis and Arthritis, visit
the Osteoporosis and Related
Bone Disease~National Resource Center. For more information about arthritis, visit FirstGov for Seniors
Arthritis page.
The web sites below provide
resources from government agencies, private companies, and nonprofit
organizations. Specifically, the
web sites supply additional information about the symptoms, diagnosis,
treatment, and current research about osteoporosis.
(Sources:
ORBD~NRC: Osteoporosis and
Arthritis: Two Common but Different Conditions and ORBD~NRC:
Fast Facts on Osteoporosis)
Government Resources:
Osteoporosis
and Related Bone Diseases ~ National Resource Center
The NIH ORBD~NRC was established in 1994 with a grant from the National
Institute of Arthritis and Musculoskeletal Diseases (NIAMS) of the National
Institutes of Health to The National Osteoporosis Foundation.
Its mission is to provide patients, health professionals, and the public
with an important link to resources and information on metabolic bone diseases,
including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta,
and hyperparathyroidism.
Administration
on Aging Provides Links to Osteoporosis Web Sites
The National Aging Information Center, sponsored by the Administration on Aging,
provides links to osteoporosis websites containing consumer information,
diagnosis and treatment statistics, and research aid education.
Centers
for Disease Control Provides Hip Fractures Report
The Centers for Disease Control and Prevention published an
online report entitled “Reducing Falls and Resulting Hip Fractures Among
Older Women”. The report
found that hip fractures among women 65 and older have climbed 40 percent
between 1988 and 1996 with about a third of older Americans suffering serious
falls each year.
National
Institute on Aging Provides Osteoporosis Fact Sheet
The National Institute on Aging provides information on osteoporosis diagnosis,
prevention, and treatment.
Food
and Drug Administration Provides Osteoporosis Article
The article “Boning Up on Osteoporosis” originally appeared in the
September 1996 FDA Consumer.
The version below is from a reprint of the original article and contains
revisions made in August 1997.
Medicare
and Osteoporosis
Find out what Medicare is doing about osteoporosis, what Medicare pays for, and
who is eligible for a bone mass measurement test under Medicare.
Private and Nonprofit Resources:
National
Osteoporosis Foundation
The National Osteoporosis Foundation (NOF) was formally established in 1986 as
the only nonprofit, voluntary health organization whose mission is to reduce and
ultimately eliminate the widespread prevalence of osteoporosis through programs
of research education and advocacy. This website provides a multitude of information about the osteoporosis,
how to prevent it, educational materials and other information.
Foundation
for Osteoporosis Research and Education (FORE)
FORE is a non-profit resource center dedicated to preventing osteoporosis
through research and education of the public and medical community to increase
awareness of risk, detection, prevention and treatment.
Osteogenesis
Imperfecta Foundation, Inc.
The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only
voluntary national health organization dedicated to helping people cope with the
problems associated with osteogenesis imperfecta.
American
Society for Bone and Mineral Research
The American Society for Bone and Mineral Research (ASBMR) is a professional
medical/scientific society established to bring together clinical and
experimental scientists involved in the study of bone and mineral metabolism.
International
Osteoporosis Foundation
The International Osteoporosis Foundation (IOF) is an international
non-governmental organization whose mission is to advance the understanding of
osteoporosis and to promote prevention, diagnosis and treatment of the disease
worldwide.
The
Calcium Information Resource
This website is sponsored by SmithKline Beecham and provides information about
calcium, links to other websites, a calcium calculator, and a specially designed
children’s area.
Dr.
C. Everett Koop Provides Online Osteoporosis Information
Dr. Koop, former U.S. Surgeon General and current Chairman of drkoop.com,
provides accurate and reliable healthcare information online.
Doctor's
Guide to Osteoporosis Information and Resources
The Doctor's Guide website provides the latest medical news and information on
osteoporosis and osteoporosis-related disorders.
The Doctor's Guide can send the latest in osteoporosis developments to
your email address.
Creighton
University Osteoporosis Research Center
The purpose of this website is to educate those seeking knowledge and to allow
those with the disease to see where their efforts are going and what they can do
to help.